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What you need to know to help you decide if you would like to take part;

We are The Stop, Collaborate and Listen Agency (The SCL Agency) and have been asked by Public Health Wales NHS Trust to interview young people who are willing to share their experience of seeking any mental health support in Wales in the last five years, whether they accessed it or not. Public Health Wales have asked us to do the research as we are separate from the NHS, and are experts in research. Being separate from the NHS will also ensure the anonymity of your response.

Public Health Wales NHS Trust would like to better understand how they can help improve mental health support services for young people like you. The experiences that you share with us, The SCL Agency, in this study will help Public Health Wales NHS Trust understand different ways to support other young people.

 

Before you decide whether you want to take part, it is important for you to understand why the research is being done and what your participation will involve.  


Please take time to read the following information carefully and discuss it with friends, family and/or people you trust, if you wish. If there is anything that is unclear or if you would like more information, you are welcome to contact a member of the research team (our details are below). 

What is the purpose of the study?    


We want to better understand young people’s experiences of seeking mental health support. A different range of organisations offer different types of support for mental health, that is why no matter what kind of support you’ve sought out, we want to hear from you. 


Learning about the challenges people might face when looking for and accessing support will provide valuable information that may help to shape and drive changes within mental health services in Wales.

 

Do I fit the eligibility criteria? 


We are looking for people between 18-25 years who are willing to share their experience of seeking any mental health support in Wales in the last five years, whether they accessed it or not. 


While we wish to hear from people with a range of mental health experiences, we are not able to invite you to interview if you are currently experiencing a mental health crisis and need urgent care. This is if you are currently feeling extremely anxious and having panic attacks or flashbacks, feeling suicidal or self-harming, or having an episode of hypomania or mania, or psychosis. If you need urgent medical help, please call 999 for an ambulance or go to A&E if you can.

What will happen if I take part?


If you decide to take part, please fill in your details on this form. If you are eligible to take part, a researcher will contact you using your preferred method to book a time convenient for you to talk to us.  We will also ask whether you consent to participate – this will be recorded, either over the phone or on a video call. 


You will take part in an interview (a conversation with a researcher) on a video call lasting around 50 minutes or via a telephone call, but it could be longer or shorter, depending on how much you want to say. Before the interview, the researcher will go through the research information with you and will answer any questions you may have. 


The researcher will also be happy to answer any questions you might have after the interview is completed. Given this, we recommend that you allow an hour for taking part. 


The interview will touch upon your motivations for seeking support with your mental health, your understanding of the options that were available to you, the ease of accessing the support you sought out, and what you thought of any support you received (what did you find helpful, what could be improved). 


The interview will be audio (and visual if on a video call) recorded with your consent, before being written out word for word, known as transcription. This written copy of the interview will not include any information that could be used to identify you, such as your name or any place names. After the interview is written, the audio recording of the interview will be permanently deleted, but we will keep the anonymised transcript. 

Do I have to take part?


Participation is completely voluntary. You should only take part if you want to and choosing not to will not negatively impact you in any way. If you have any questions after reading the information sheet, you can contact the research team who will be happy to answer them. You could also discuss the study with someone you trust if that would help you decide. 

What are the possible risks of taking part?

It is very important that you feel safe and supported during your participation in this study. You can have a trusted person with you during the interview if you prefer. The researcher will not ask you about the specific mental health challenges you have experienced but if there are any questions that you do not feel comfortable answering, that is completely OK. You don’t have to discuss anything that you don’t want to during the interview, and you can end the interview at any point.

At the end of the interview, the researcher will talk briefly to you to find out how you are following the interview and tell you about resources that offer support. You can also refer to some of the sources of guidance and support listed at the end of this document if you need any support.

What are the possible benefits of taking part? 


Your participation will help us to better understand young people’s experiences of accessing support for their mental health within Wales. We will use the information you provide to make recommendations to Public Health Wales, wider services, and Welsh Government on how we can improve support for young people.

 

You will receive a One4all £20 voucher as a thank you for your time.

Will the information I provide be kept confidential?

 
All information will be stored in accordance with Data Protection Laws. The interviews will be recorded, but these will be anonymised at the point of transcription and the raw audio recordings will be deleted.  We may use direct quotes from your interview in any reports if they help us illustrate key points. However, these quotes will be anonymised and therefore not identifiable to you. All data for the study will be stored on a password protected computer. 


Information that you give us in the interview will only be disclosed to the relevant services if a safeguarding issue is shared with researchers. In this instance, the relevant information will need to be shared with the relevant services, in line with the Services and Wellbeing (Wales) Act. 

What if I change my mind about taking part? 


You are free to withdraw from the study, with no need to provide a reason, at any point up until the anonymised transcript is prepared. We will be unable to delete your data after this point, as we will have no way of knowing which transcript contains your interview. However, if you wish to withdraw at any time before this, including during the interview itself, you can let us know and we will delete any information you have provided. 

What will happen to the results of the study?

The results of the study will be summarised in a research briefing and an infographic which will be published by Public Health Wales. They may also be published in a peer-reviewed scientific journal and presented at conferences and/or to interested organisations that work with young people. You won’t be identifiable in any outputs from the study.

How will we use information about you?


The SCL Agency will need to use information about you to provide you with all the information about the study and to ensure they are gathering experiences of a diverse range of people. For these reasons, the agency will collect the following personal data: name, telephone number, email address, language preference (English or Welsh), age, sexual orientation, gender identity, ethnic group, and postcode.


Your contact details (name, telephone number and email address) will only be used to contact you and will be securely destroyed once you have participated in the interview. If you are not eligible or if you decide not to participate, your personal data will be destroyed immediately.


Some of your information will be securely shared with PHW for research purposes. Everyone involved in this study will keep your data safe and secure. We will also follow all privacy rules. Once we have finished the study, we will keep some data to check the results. We will write our reports in a way that no-one can work out that you took part in the study. 


What are your choices about how your information is used? 


•    You can stop being part of the study at any time, without giving a reason, but we will keep information about you that we have already anonymised (for example, a written copy of your interview where your name has been removed and replaced with a code). 
•    We need to manage your records in specific ways for research to be reliable. This means that we won’t be able to let you see or change the data we hold about you.  

Who should I contact for further information?


For information about the interview process, you can contact: Sarah Glover at sarahglover@thesclagency.co.uk (English) or Dr Lois Griffiths at lois.griffiths@wales.nhs.uk (Cymraeg).


For information about the entire research study, you can contact: Dr Lois Griffiths (English/Cymraeg). Research and Evaluation Division, Public Health Wales, Number 2 Capital Quarter, Tyndall Street, Cardiff CF10 4BZ. Email: lois.griffiths@wales.nhs.uk


If you have any concerns about this study, please contact:
Phone: 02920 104294 
Email: publichealthwales.handlingconcerns@wales.nhs.uk
Post: Director of Quality, Nursing and Allied Health Professionals
Number 2 Capital Quarter
Tyndall Street
Cardiff
CF10 4BZ 

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What will happen now?


Once you have read this additional information, if you are still keen to take part, fill in all the details on the registration form. We do ask for quite a lot of detail as this is a small study and we want to make sure we hear views from a diverse cross section of people living in Wales.


If you do not meet the criteria of the research for any reason, we will be in touch via email to let you know. We will offer you an alternative route to share feedback with Public Health Wales but it will not be included in this study and unfortunately you will not be eligible for the One4all voucher.


If you do meet the criteria for the study, an SCL Agency researcher will contact you using your preferred method with some times and dates to choose from. They will then forward some information via email for you to look at before your chat. This email will also contain the Zoom link, please add this to your calendar or diary if possible as a reminder. 

This correspondence will be conducted in your preferred language (English or Welsh). We are unfortunately unable to conduct the interviews in any other language, but please let the researcher know if we were unable to accommodate your first-choice language.


Once you have completed the interview, we will send the One4all voucher to the email address you provided us with.

Thank you for reading this information sheet and for considering taking part in this research. 

Please see the table below for some national sources of guidance and support. 
Sources of support
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