Beth sydd angen i chi ei wybod i'ch helpu i benderfynu a hoffech chi gymryd rhan;
We are Public Health Wales NHS Trust, and we would like to better understand how we can help improve mental health support for young people like you. To make sure we understand different ways to deliver support, we have asked the Stop Collaborate and Listen Agency (The SCL Agency) to interview young people who are willing to share their experience of seeking any mental health support as a child or young adult in Wales, whether they accessed it or not.
We have asked the agency to do the research as they are separate from the NHS, are experts in research and will ensure the anonymity of your response.
Before you decide whether you want to take part, it is important for you to understand why the research is being done and what your participation will involve.
Please take time to read the following information carefully and discuss it with friends, family and/or people you trust, if you wish. If there is anything that is unclear or if you would like more information, you are welcome to contact a member of the research team (our details are below).
What is the purpose of the study?
We want to better understand young people’s experiences of seeking mental health support. A different range of organisations offer different types of support for mental health, that is why no matter what kind of support you’ve sought out, we want to hear from you.
Learning about the challenges people might face when looking for and accessing support will provide valuable information that may help to shape and drive changes within mental health services in Wales.
Do I fit the eligibility criteria?
We are looking for people between 18-25 years who are willing to share their experience of seeking any mental health support as a child or young adult in Wales, whether they accessed it or not.
While we wish to hear from people with a range of mental health experiences, we are not able to invite you to interview if you are currently experiencing a mental health crisis and need urgent care. This is if you are currently feeling extremely anxious and having panic attacks or flashbacks, feeling suicidal or self-harming, or having an episode of hypomania or mania, or psychosis. If you need urgent medical help, please call 999 for an ambulance or go to A&E if you can.
What will happen if I take part?
You will be invited to take part in an interview (a conversation with a researcher) on a video call lasting around 30 to 40 minutes or via a telephone call, but it could be longer or shorter, depending on how much you want to say. Before the interview, the researcher will go through the research information with you and will answer any questions you may have. They will also be happy to answer any questions you might have after the interview is completed. Given this, we recommend that you allow an hour for taking part.
The interview will touch upon your motivations for seeking support with your mental health, your understanding of the options that were available to you, the ease of accessing the support you sought out, and what you thought of any support you received (what did you find helpful, what could be improved).
The interview will be audio (and visual if on a video call) recorded with your consent, before being written out word for word, known as transcription. This written copy of the interview will not include any information that could be used to identify you, such as your name or any place names. After the interview is written, the audio recording of the interview will be permanently deleted, but we will keep the anonymised transcript. You can stop the interview, or the recording, at any time without any consequences.
Do I have to take part?
Participation is completely voluntary. You should only take part if you want to and choosing not to will not negatively impact you in any way. If you have any questions after reading the information sheet, you can contact the research team who will be happy to answer them. You could also discuss the study with someone you trust if that would help you decide.
If you decide to take part, a researcher will call and take your contact details, and ask some questions to ensure you fit the eligibility criteria. We will also ask whether you consent to participate – this will be recorded, either over the phone or on a video call.
What are the possible risks of taking part?
It is very important that you feel safe and supported during your participation in this study. You can have a trusted person with you during the interview if you prefer. The researcher will not ask you about the specific mental health challenges you have experienced but if there are any questions that you do not feel comfortable answering, that is completely OK. You don’t have to discuss anything that you don’t want to during the interview, and you can end the interview at any point.
At the end of the interview, the researcher will talk briefly to you to find out how you are following the interview and tell you about resources that offer support. You can also refer to some of the sources of guidance and support listed at the end of this document if you need any support.
What are the possible benefits of taking part?
Your participation will help us to better understand young people’s experiences of accessing support for their mental health within Wales. We will use the information you provide to make recommendations to Public Health Wales, wider services, and Welsh Government on how we can improve support for young people. You will receive a Love2shop £20 voucher as a thank you for your time. You will need to provide an email address to receive this.
Will the information I provide be kept confidential?
All information will be stored in accordance with Data Protection Laws. The interviews will be recorded, but these will be anonymised at the point of transcription and the raw audio recordings will be deleted. We may use direct quotes from your interview in any reports if they help us illustrate key points. However, these quotes will be anonymised and therefore not identifiable to you.
All data for the study will be stored on a password protected computer.
Information that you give us in the interview will only be disclosed to the relevant services if a safeguarding issue is shared with researchers. In this instance, the relevant information will need to be shared with the relevant services, in line with the Services and Wellbeing (Wales) Act.
What if I change my mind about taking part?
You are free to withdraw from the study, with no need to provide a reason, at any point up until the anonymised transcript is prepared. We will be unable to delete your data after this point, as we will have no way of knowing which transcript contains your interview. However, if you wish to withdraw at any time before this, including during the interview itself, you can let us know and we will delete any information you have provided.
What will happen to the results of the study?
The results of the study will be summarised in a research briefing and an infographic which will be published by Public Health Wales. They may also be published in a peer-reviewed scientific journal and presented at conferences and/or to interested organisations that work with young people. You won’t be identifiable in any outputs from the study.
Who should I contact for further information?
For information about the interview process you can contact: Sarah Glover at email@example.com
For information about the entire research study, you can contact: Dr Diana Bright or Dr Lois Griffiths, Research and Evaluation Division, Public Health Wales, Number 2 Capital Quarter, Tyndall Street, Cardiff CF10 4BZ. Email: Diana.Bright@wales.nhs.uk or Lois.Griffiths@wales.nhs.uk
If you have any concerns about this study, please contact:
Public Health Wales Concerns Team at firstname.lastname@example.org
Thank you for reading this information sheet and for considering taking part in this research.
Please see the next page for some national sources of guidance and support.